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Monday, July 28, 2025 | |||||
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Data Security, Privacy and Confidentiality
What about confidentiality? The NCPR has developed strict policies and procedures to maintain confidentiality in disclosure of data.
If a third party is processing data on behalf of the registry and sponsor, a contractual procedure will be signed between the registry/sponsor and the third party to ensure compliance with above mentioned requirements.
The registry, its staff and its third party vendor will protect the confidentiality of registry data as follows:
The registry will institute stringent information security policies and procedures, supported by state of the art data protection technology, which will be in accord with standard disease registration practice, and in compliance with applicable regulatory guidelines.
Security Policy For NCPR-eNCPR Web Application (PDF)
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