National Cancer Patient Registry (NCPR): A patient registry (Clinical database) is to evaluate health outcomes of patients undergoing treatment for cancers in Malaysia. Availability of local data will enable us to evaluate and compare the outcome of our patients. This will help to support our clinical decision making and local policy, improve access to treatment and improve the provision and delivery of oncology services in Malaysia. The National Cancer Patient Registry is proposed to provide a database for cancer patients who come for treatment in Malaysia.
The objectives of the registry are as follows:
Patients with cancers from participating clinical sites who meet eligibility criteria will be enrolled into the registry. Patient inclusion criterion is deliberately broad and shall include any patient with a confirmed diagnosis of cancer.
There is no prescribed study visits. Patient shall attend the clinical site as and when required per the standard of care at the site. Required data shall be collected as they become available.
Patient study population and Clinical sites
The registry study population consists of patients with cancers to be recruited from participating sites in Malaysia. All new patients with cancers undergoing treatment at a participating clinical site are eligible for entry into the registry. Patients cannot be withdrawn from the registry. Patients have the right to object disclosure of their information as stated in the public notice on information on patient confidentiality. However, a subject may be lost to follow-up. In that case, the registry coordinating centre must be informed. Participating sites must attempt to re-establish contact with subjects by telephone, correspondence or home visit and thus to resume follow-up of patient. The site shall complete the Outcome Notification page of the CRF for a patient who is lost to follow-up and attempts at re-establishing contact have failed.
Benefits of being a participant of the NCPR