|
Frequently Asked Questions (FAQ)
1.
What is a disease registry?
Disease Registry or surveillance is defined as an ongoing,
systematic collection, analysis and interpretation of
disease specific data, and timely dissemination of these
consolidated and processed information essential to the
planning, implementation and evaluation of clinical and
public health practice, to contributors to the surveillance
and other interested persons.
back to top
2.
What is NTrD?
The National Trauma Database (NTrD) is a service supported
by the Ministry of Health (MOH) to collect data on outcome
of trauma patients in Malaysia. The information can be used
to estimate the incidence of major trauma according to the
type of injury, to evaluate its risk factors and treatment
in the country. The injuries of the trauma patient will be
scored according to the Injury Severity Score (ISS) method.
The head injury patients will have their outcomes data
monitored at discharge, 3 months, 6 months and 12 months.
Such information is useful for assisting the Ministry of
Health, non-governmental organizations, private providers
and industry in planning and evaluation, leading to major
trauma prevention and control.
back to top
3.
Why National Trauma Database (NTrD)?
There are several important issues when applying the
rigorous standards and protocols from clinical trials into
real-life practice. We should ask ourselves:
Are the population and the patients groups in Malaysia
similar to those being investigated in the clinical trails?
Are our hospitals following the guidelines set out by the
expert committees?
Are we seeing the same results and benefits of
implementing evidence-based strategies?
Which strategy the best value in terms of
cost-effectiveness for the Ministry?
Furthermore, much of what we understand about risk and
likelihood of major trauma and indeed its incidence and
prevalence are derived from Western data. There is now an
increasing awareness of ethnic variations and risk,
socio-cultural and socio-economic influences as well as
geographical variations. The risk prediction of major trauma
is also unclear and may be different in the patients.
back to top
4.
What is the purpose of NTrD?
The objectives of the NTrD are to:
Determine the frequency, mechanism of injury and
distribution of major trauma in Malaysia. These are useful
measures of health burden arising from the major trauma and
its management in the country.
Determine the outcome and probability of survival of the
trauma patients.
Evaluate the major trauma management in the participating
hospitals and to come up with the guidelines for improved
trauma care.
Determine the extent to which improvements introduced,
have been achieved.
Stimulate and facilitate research on major trauma and its
management using this registry.
back to top
5.
Who should participate in the NTrD?
a. Source Data Producers:
All emergency physicians and neurosurgeons in Malaysia who
provide trauma diagnostic services or who care for trauma
patients such as public health practitioner, health care
provider, health service planner and decision maker,
researchers, and voluntarily report data to the NTrD.
back to top
6.
How is NTrD organized?
The NTrD is sponsored by the Ministry of Health and
supported by several of its organizations:
Emergency Department, Selayang Hospital
Neurosurgery Department, Kuala Lumpur Hospital
Clinical Research Centre, MOH
A Governance Board will be established to oversee the
operations of the NTrD. The MOH, Universities, professional
bodies, NGOs and private healthcare providers will be
present on this committee to ensure that the NTrD stays
focused on its objectives, continuing relevance and
justification.
The Governance Board for NTrD
back to top
7.
Who reports to the NTrD?
For the NTrD to succeed, ideally all doctors who have
anything to do with trauma ought to report to the NTrD. We
urge you to do your bit for your community, and help NTrD
obtain the information so crucial in promoting effective
trauma prevention and control.
The NTrD receives data on trauma from 2 main sources:
All emergency physicians and neurosurgeons in Malaysia who
provide trauma diagnostic services or who care for trauma
patients, and voluntarily report data to the NTrD.
There is a plan to link NTrD to the National Vital
Registration system (Jabatan Pendaftaran Negara) to
ascertain mortality outcome.
back to top
8.
How can I participate in the NTrD?
For the NTrD to succeed, ideally all doctors who have
anything to do with trauma ought to report to the NTrD. We
urge you to do your bit for your community, and help NTrD
obtain the information so crucial in promoting effective
trauma prevention and control.
back to top
9.
What are the benefits of participating in NTrD?
Apart from doing your bit for your community, here are some
other benefits to being a reporter:
Access to the database and therefore study the trend of
trauma in the country.
Online data query and statistics of your institution
anytime, anywhere.
Online comparison of your institution data versus the
country data anytime, anywhere.
Data security and privacy are in compliance with
regulatory requirement.
Invitation to all functions organized by the NTrD.
Acknowledgement in all publications of the NTrD.
Complementary personal copy of all NTrD publications.
Free listing in the NTrD website.
Tap into a network of like-minded people from diverse
professional disciplines and backgrounds.
back to top
10.
What about confidentiality?
Current legislation allows doctors to release their
patients data to persons demonstrating a need, which is
essential to public health and safety. The NTrD meets this
requirement. The NTrD has also developed strict policies and
procedures to maintain confidentiality in disclosure of
data.
back to top
|
