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What is a
disease registry?
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What is the National Cardiovascular Disease
Database (NCVD)?
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Why National Cardiovascular Disease Database (NCVD)?
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What are
the purpose of NCVD?
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Who should participate in NCVD?
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How is NCVD
organised?
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Who reports
to the NCVD?
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How
can I participate in the NCVD?
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What are the benefits of participating in the
NCVD?
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What about
confidentiality?
What is a disease
registry?
Disease Registry or surveillance is defined as an ongoing,
systematic collection, analysis and interpretation of disease
specific data, and timely dissemination of these consolidated
and processed information essential to the planning,
implementation and evaluation of clinical and public health
practice, to contributors to the surveillance and other
interested persons.
What is
NCVD?
The National Cardiovascular Database (NCVD) is a service
supported by the Ministry of Health (MOH) to collect information
about cardiovascular disease in Malaysia, which will enable us
to know the incidence of cardiovascular disease, and to evaluate
its risk factors and treatment in the country. This information
is useful in assisting the MOH, Non-Governmental Organizations,
private healthcare providers and industry in program planning
and evaluation, leading to cardiovascular disease prevention and
control.
Why National Cardiovascular Disease Database (NCVD)?
Malaysia has several cardiovascular disease databases in
tertiary MOH hospitals and private providers in Kuala Lumpur,
Sarawak, Penang, Johore and National Heart Institute (Institut
Jantung Negara). The National Cardiovascular Disease Database (NCVD)
is established to integrate these various database and other
data source to achieve nation-wide cardiovascular database.
What is the purpose of
NCVD?
The objectives of the NCVD are to:
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Determine the number and the time trend of
acute coronary syndromes in Malaysia.
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Determine the socio demographic profiles of
these patients to better identify the high-risk group in our
Malaysian population.
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Determine the efficiency of, and adherence to
current guidelines of treatment guidelines
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Determine the number, evaluate and monitor the
outcomes of percutaneous coronary intervention (PCI) based on
selected performance indicators.
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Determine the cost to the nation by
cardiovascular disease and the cost-effectiveness of treatment and
prevention programs
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Stimulate and facilitate research of
cardiovascular disease using this database.
Who should
participate in the NCVD?
a. Source data producers: All cardiologists and physicians in
Malaysia who provide cardiovascular disease diagnostic services
or who care for cardiovascular disease patients, and voluntarily
report data to the NCVD.
How is NCVD organized?
The NCVD is sponsored by the Ministry of Health and
supported by several organizations:
A Governance Board will be established to oversee the
operations of the NCVD. The MOH, Universities, professional
bodies, NGOs and private healthcare providers will be present on
this committee to ensure that the NCVD stays focused on its
objectives, continuing relevance and justification.
Who reports to the NCVD?
For the NCVD to succeed, ideally all doctors who have anything
to do with cardiovascular disease ought to report to the NCVD.
We urge you to do your bit for your community, and help NCVD
obtain the information so crucial in promoting effective
cardiovascular disease prevention and control.
The NCVD receives data on cardiovascular disease from 2 main
sources:
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All cardiologists and physicians in Malaysia
who provide cardiovascular disease diagnostic services or who care
for cardiovascular disease patients, and voluntarily report data to
the NCVD.
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There is a plan to link NCVD to the National
Vital Registration system (Jabatan Pendaftaran Negara) to ascertain
mortality outcome.
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There is also a plan to link the NCVD to the
National Operative Procedure register and the MOH’s Health
Management Information System (HMIS) to determine morbidity events
when these two databases are properly established.
How can I
participate in the NCVD?
For the NCVD to succeed, ideally all doctors who have anything
to do with cardiovascular disease ought to report to the NCVD.
We urge you to do your bit for your community, and help NCVD
obtain the information so crucial in promoting effective
cardiovascular disease prevention and control.
What
are the benefits of participating in NCVD?
Apart from doing your bit for your community, here are some
other benefits to being a reporter:
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Access to the database and to therefore study
the trend of cardiovascular disease in Malaysia.
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Online data query and statistics of your
institution anytime, anywhere
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Online comparison of your institution data
versus the country data anytime, anywhere
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Data security and privacy are in compliance
with regulatory requirement
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Invitation to all functions organized by the
NCVD.
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Acknowledgement in all publications of the
NCVD.
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Complementary personal copy of all NCVD
publications.
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Free listing in the NCR’s web site.
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Tap into a network of like-minded people from
diverse professional disciplines and backgrounds.
What about confidentiality?
Current legislation allows doctors to release their patients’
data to persons demonstrating a need, which is essential to
public health and safety. The NCVD meets this requirement.
The NCVD has also developed strict policies and procedures to
maintain confidentiality in disclosure of data.
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