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Diabetes in Children and Adolescents
Registry
The Diabetes in Children and Adolescents Registry (DiCARE) is a
MOH supported service to collect information about diabetes
mellitus. The information can be used to estimate the incidence
of diabetes disease according to the types, to evaluate its risk
factors and treatment in the country. Such information is useful
for assisting the MOH, non-governmental organizations, private
providers and industry in planning and evaluation, leading to
diabetes disease prevention and control.
The DiCARE is sponsored by the Ministry of Health and supported
by several of its organizations:
• Paediatric and Adult Medical Departments, MOH.
• Clinical Research Centre, Kuala Lumpur Hospital.
• Hospital Universiti Kebangsaan Malaysia.
• Universiti Malaya Medical Centre.
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The CRC of the MOH will provide technical support in the form of
clinical epidemiology expertise, and biostatistical and ICT
services.
A Governance Board has been established to oversee the operations
of the DiCARE. The MOH, universities, professional bodies, NGOs
and private healthcare providers will be present on this
committee to ensure that the DiCARE stays focused on its
objectives, continuing relevance and justification.
Purpose of the DiCARE
The objectives of the DiCARE are to:
• Determine the number and the time trend of diabetes mellitus
in the children and adolescents in Malaysia.
• Determine the socio demographic profiles of these patients to
better identify the high-risk group in our Malaysian population.
• Determine the number, evaluate and monitor the outcomes of
intervention in terms of metabolic control and complications.
• Stimulate and facilitate research using this registry.
Sources of diabetes disease data in
Malaysia
The DiCARE receives data on diabetes disease from main source of:
• All paediatricians in Malaysia beginning with those currently
working in the government sector and later on extending it to those
beyond (private and armed forces) for data on diabetes mellitus in
the country.
Wouldn’t you want to report to the DiCARE?
Click here for listing of DiCARE participants
Click here to register online
For the DiCARE to succeed, ideally all doctors who have anything to
do with diabetes disease ought to report to the DiCARE. We urge you
to do your bit for your community, and help DiCARE obtain the
information so crucial in promoting effective diabetes disease
prevention and control.
Diabetes Disease Reporting Made Simple
• Online data collection
Here are the benefits gained if you were to
reprt cases to DiCARE?
Apart from doing your bit for your community, here are some other
benefits to being a reporter:
• Access to the database and to therefore study the trend of
diabetes disease among children and adolescents.
• Online data query and statistics of your institution anytime,
anywhere.
• Online comparison of your institution data versus the country data
anytime, anywhere.
• Data security and privacy are in compliance with regulatory
requirement.
• Invitation to all functions organized by the DiCARE.
• Acknowledgement in all publications of the DiCARE.
• Complementary personal copy of all DiCARE publications.
• Free listing in the DiCARE’s web site.
• Tap into a network of like-minded people from diverse professional
disciplines and backgrounds.
What about confidentiality?
Current legislation allows doctors to release their patients’ data
to persons demonstrating a need, which is essential to public health
and safety. The DiCARE meets this requirement. The DiCARE has also
developed strict policies and procedures to maintain confidentiality
in disclosure of data.
Sponsors
The MOH is the sponsor of the registry where the day to day
operations of the Diabetes in Children and Adolescents Registry is
largely funded by Ministry of Health Malaysia.
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