About DermReg

Organisation

Governance Board

Steering Committee

Registry Coordinating Centre

Source Data Providers (SDP)

Publications

News & Events

Data Request

Links


eDermReg (MPR, Skin Biopsy)

eCUSUM

 

News & Events

2017

2017

Date

Events
27-28 Feb Government Dermatologist meeting, Hospital Kuala Lumpur.
   
1-2 April Persatuan Dermatologi Malaysia Midterm meeting.
Institut Paediatrik, Hospital Kuala Lumpur.
   
1-2 April Oral presentation: Psoriasis Registry – Malaysian Experience and Other Registries Worldwide.
South East Asia Immunology Masterclass.
Intercontinental Bangkok, Thailand.
   
28 April GMeeting with CRC to discuss publication potential from Malaysian Psoriasis Registry.
   
1 May Hospital Sultan Haji Ahmad Shah, Temerloh, Hospital Jerantut and Hospital Jengka joined MPR.
   
14 May National Skin Day Celebration.

2016

2016

Date

Events
26-27 March Persatuan Dermatologi Malaysia Midterm meeting.
Universiti Malaya
   
18-19 April Poster presentation: Quality of Life in Adults Patients with Psoriasis in Malaysia: Evidence from the Malaysian Psoriasis Registry.

22nd Regional Conference of Dermatology (Asian-Australasian).
Raffles City Convention Centre, Singapore.
   
14-15 May South East Asia Immunology Masterclass.
KL Hilton, Kuala Lumpur.
   
25-26 May Government Dermatologist meeting.
Hospital Kuala Lumpur.

Majority decides that the Malaysian Psoriasis Registry should be filled once for patients on topical treatment and every six months for patients on phototherapy/systemic treatment/biologic.
   
18 June Biologic Masterclass.
KL Hilton, Kuala Lumpur.
   
27– 28 July Poster presentation: 2. Clinical Characteristics & Risk Factors of Patients with Pustular Psoriasis in Malaysia.

National Conference for Clinical Research (NCCR) 2016.
Hotel Istana, Kuala Lumpur
   
1 Sept Hospital Sultan Ismail, Johor Bharu joined Malaysian Psoriasis Registry
   
15-18 Sept Poster presentation:
  1. Factors Affecting Improvements in Quality of Life among Adult Patients with Psoriasis.
  2. Clinical Characteristics & Risk Factors of Patients with Pustular Psoriasis in Malaysia.
41st Annual Dermatology Conference.

Hotel Pullman, Kuching, Sarawak.
   
29 Oct 2016 World Psoriasis Day 2016' celebration.
   
6 Nov 2016 World Psoriasis Day 2016 Kuala Lumpur
Perdana Botanical Gardens, Kuala Lumpur.
   

2015

2015

Date

Events
29 March Oral presentation on 'Psoriasis: The Burden of Disease – How plaque psoriasis affects the individual & the healthcare system.'
Immunology Masterclass (Northern Region).
Evergreen Laurel Hotel, Penang.
   
18-19 April BIO-FOCUS - Biotherapeutics Speaker Training Project.
Grand Hyatt Hotel, Taipei, Taiwan.
   
25-26 April PDM Midterm Meeting 2015.
Medical Academies of Malaysia, Kuala Lumpur.
   
3 May Oral Presentation on 'Epidemiology of Psoriasis & Psoriatic Arthritis : Evidence from the Malaysian Psoriasis Registry'
PsA Workshop- Bridging Best Practise Among Rheumatologists & Dermatologists.
Radisson Hotel, Brunei.
   
8 - 13 June Poster Presentation:
  1. Mortality and Its Causes Among Adult Patients with Psoriasis in Malaysia – Evidence from the Malaysian Psoriasis Registry.
    Azura Mohd Affandi, Fatimah A. Alias, A. Muneer Abdul Hamid, Nurakmal Baharum, Roshidah Baba.

  2. Epidemiology and Clinical Pattern of Psoriasis in Paediatric Population in Malaysia.
    Azura Mohd Affandi, Fatimah A. Alias, Nurakmal Baharum, Asmah Johar, Roshidah Baba.

  3. A 5-year Retrospective Cohort of Psoriasis in Hospital Tengku Ampuan Rahimah, Klang (2008 – 2013).
    Ramalingam R, Ng TG, Mohd Affandi A, Alias FA

23rd World Congress of Dermatology 2015.
Vancouver Convention Centre, British Columbia, Canada.
   
26 Aug Disease Registry Data to Improve Healthcare and Clinical Effectiveness Seminar.
Cititel Hotel, Midvalley, Kuala Lumpur.
   
14 - 17 Sept 40th Annual Dermatology Conference of the Dermatological Society of Malaysia.
Weil Hotel, Ipoh, Malaysia.
   
29 October World Psoriasis day Celebration at Hospital Kuala Lumpur.
   

2014

2014

Date

Events
25-26 Jan Oral presentation on 'Pattern of Arthritis, Co-morbidities & Mortality in Patients with Psoriasis - Evidence from the Malaysian Psoriasis Registry' at the Asian Multi-disciplinary Interactive Symposium in Immunology.
Le Meridien Hotel, Kuala Lumpur
   
1 Feb Hospital Selayang joined MPR
   
11 Feb Short presentation of the Malaysian Psoriasis Registry in conjuction with Dermatology CME.
Le Meridien Hotel, Kuala Lumpur.
   
9-12 April Free paper presentation on "Malaysian Psoriasis Registry - Lessons Learned" at the 21st Regional Conference in Dermatology (Asian-Australasian), incorporating the 6th Annual Meeting of the Asian Academy of Dermatology and Venereology.
Furama Convention Centre and Hotel, Danang, Vietnam.
   
1 May Hospital Ampang and Hospital Putrajaya joined the Malaysian Psoriasis Registry
   
16-18 May Application of Intermediate to Advanced Biostatistics in Medical Sciences Workshop
Grand Seasons Hotel, Kuala Lumpur
   
12-14 Aug Patient Registry Data for Healthcare Improvement: Data Quality and Utilization Workshop
Grand Seasons Hotel, Kuala Lumpur
   
13 Aug Oral Presentation on 'Psoriasis: Not Just a Skin Disease – Evidence from the Malaysian
Psoriasis Registry' at weekly HKL CME
Hospital Kuala Lumpur
   
15-18 Sept Oral presentation on 'Updates on the Malaysian Psoriasis Registry' at the 39th Annual Dermatology Conference
G Hotel, Penang

Poster presentation on 'A 5-year Retrospective Cohort of Psoriasis in Hospital Tengku Ampuan Rahimah, Klang (2008 – 2013)' at the 39th Annual Dermatology Conference [ Download] G Hotel, Penang
   
19-20 Sept Driving Expertise & Excellence in Psoriasis Management
Salford Royal Hospital, Manchester, United Kingdom
   
26 Sept Oral presentation on 'Epidemiology of Psoriasis and Psoriatic Arthritis – Evidence from the Malaysian Psoriasis Registry'
Universiti Malaya Medical Centre
   
22 Nov 1st National Biotherapeutics Congress – Putting Patients First.

Hilton Hotel, Petaling Jaya.
   
8 - 9 Dec The ABC of Research Workshop.
The Academy of Medicine, Malaysia.
   

2013

2013

Date

Events
2 April Updates from Malaysian Psoriasis Registry (MPR) in the Psoriasis International Network Newsletter.
http://www.psoriasis-international.org/spip.php?page=courrier&id_courrier=58
   
13-14 April

Oral presentation on the “Updates of the Malaysian Psoriasis Registry (2007-2012) at the Malaysian Dermatology Society (PDM) Midterm Meeting,
Hotel J.W Marriot, Kuala Lumpur

   
21 -23 May

Malaysian Health Data Dictionary (MyHDD) Workshop,
Hotel Royal, Kuala Lumpur

   
4 - 6 July

Oral and poster presentation on ‘Clinical Characteristics of Patients with Facial Psoriasis in Malaysia’ at the 4th Congress of the Psoriasis International Network, Palais des Congrès, Paris, France
 http://www.pso2013.com/medias/Content/Images/PSO2013_-_Preliminary_Programme.pdf

   
10 July

PsorAsia MD Meeting, in conjuction with the 9th Asian Dermatological Congress, Hong Kong

   
3rd - 5th September Poster Presentations on:
  1. Clinical Characteristics of Patients with Facial Psoriasis in Malaysia.
  2. A Review of the Malaysian Psoriasis Registry (2007-2012)
at the 7th National Conference for Clinical Research 2013,
Seri Pacific Hotel, Kuala Lumpur.
   
5th September Use of Registry Data Workshop, in conjuction with the 7th National Conference for Clinical Research 2013, Seri Pacific Hotel, Kuala Lumpur.
   
12th - 15th September Poster Presentation and teleconference on:
- Updates of the Malaysian Psoriasis Registry (2007-2012).

Free Paper Presentation on:
- Impact of Psoriasis on the Quality of Life Among Paediatric Psoriasis Patients in Malaysia.

at the 38th PDM Annual Congress and Annual General Meeting 2013, The Zenith Hotel, Kuantan, Pahang.
   
13th October Launch of the Malaysian Clinical Practice Guidelines on the Management of Psoriasis.
   

2012

2012

Date

Events
24-25 November Oral Presentation on 'Psoriasis-Disease Characteristics & Epidemiology: Evidence from the Malaysian Psoriasis Registry'.
Presented at the Malaysian Inter-Disciplinary Symposium in Immunology 2012, Melaka.
   
26-28 Sept Poster Presentation at the 6th National Conference on Clinical Research 2012, Kuala Lumpur
   
14-17 Sept Poster Presentation at the 37th Dermatological Annual Conference & General meeting 2012, Melaka
   
13 Sept

Presentation of  DermReg update & Biologic Registry final proposal at the Government Dermatologist meeting.

   
12 Aug PASSION III (Janssen)
Practical Aspects of Psoriasis Management & Insights on Patient Needs.
Malaysian Psoriasis Registry Coordinator meeting.
   
16-17 July Registry User Seminar, Nilai
   
14-15 July

ICEBERG in Psoriasis 2012 (Abbot) (Interactive Case-Base Review Group).
Malaysian Psoriasis Registry Investigators meeting.

Diagnostic Skin Biopsy Registry (DSBR) ceased operation

2011

2011

Date

Events
July 2011 Mini Registry User Seminar for DermReg
June 2011

5th National Conference for Clinical Research, Sunway Pyramid Convention Centre, Petaling Jaya.

Poster presentation of "Quality of life among adult patients with psoriasis".

National Protocol for Biologic Intervention for Psoriasis was drafted
Biologic Registry Extension for MPR Case Report Form was drafted
DermReg Registry Workshop for Site Coordinators 2011;  Skin Biopsy CUSUM was introduced to MOH dermatology centres
Presentation of MPR results in the Practical Aspects of Psoriasis Management & Insights on Patient Needs (PASSION) Meeting, Le Meridian Hotel, Kuala Lumpur

   
May 2011 22nd World Congress of Dermatology, Seoul, Korea
   
April 2011 Hospital Sultanah Aminah Johor Bahru and Hospital Melaka joined DSBR
   
Jan 2011 Governance Board and Steering Committee Meeting                        
Proposed extension of MPR on biologic treatment for psoriasis

2010

2010

Date

Events
Oct 2010 19th Regional Conference of Dermatology 2010 (Asian-Australasian), Kota Kinabalu Poster presentation of the Malaysian Psoriasis Registry: results from October 2007 to December 2008 (awarded The Best Poster Prize)
Principal Investigators and Project Managers Meeting organised by CRC
   
July 2010 
  1. Presentation of MPR results in the Practical Aspects of Psoriasis Management & Insights on Patient Needs (PASSION) Meeting, Le Meridian Hotel, Kuala Lumpur
  2. Presentation of MPR results in the PsorSummit Asian Symposium on Managing the Challenges of Psoriasis, Pan Pacific Hotel, Singapore
  3. Steering Committee and Investigators' Meeting
  4. Presentation of the Skin Biopsy CUSUM Pilot Study final results in the Annual Government Dermatologists Meeting
May 2010 National University of Malaysia (UKM) Medical Centre joined MPR
   
April 2010     University Malaya Medical Centre (UMMC) joined MPR
   
Mar 2010  Presentation of the Skin Biopsy CUSUM Pilot Study Preliminary Results in Hospital Kuala Lumpur

2009

2009

Date

Events
11-13 Dec 2009   34th Annual Dermatology Congress and AGM
   
10 Dec 2009   MPR Investigators' Meeting 1/2009
   
Nov 2009     eDSBR web application was developed and deployed eMPR and eDSBR were incorporated into eDermReg
   
1 Sept 2009 Commencement of Skin Biopsy CUSUM pilot study in HKL
   
Aug 2009 Prince Court Medical Centre joined MPR
Diagnostic Skin Biopsy Registry Procedure Form was finalised
   
30 July 2009 MPR Steering Committee Meeting 1/2009
DSBR Steering Committee Meeting 1/2009
Meeting on the Implementation of Skin Biopsy CUSUM 2/2009
   
14 July 2009 National Dermatology Registry (DermReg) was officially established
First Governance Board Meeting
   
June 2009 Hospital Melaka joined MPR
   
13 April 2009 Meeting on the Skin Biopsy eCUSUM and MPR 1/2009

2008

2008


Date

Events
Nov 2008 Submission of Annual Progress Report to CRC
Hospital Sultanah Aminah, Johor Bahru joined MPR
   
Oct 2008 Poster presentation of the MPR Preliminary Report in the CreaTe 2008 Conference - won the First Prize
Registry Users' Seminar was attended by the Registry Coordinator and Registry Manager
   
Sept 2008 Publication of MPR Preliminary Report in Medical Journal of Malaysia
   
August 2008 MPR Investigators' and Steering Committee Meeting
   
July 2008 Two private dermatologists, Dr Allan Yee Kim Chye and Dato' Dr Sushil Kumar Ratti joined MPR as SDP
   
Mar 2008 MPR Preliminary Report of Pilot Study was submitted for publication
   
Jan 2008 Hospital Umum Sarawak and Hospital Tengku Ampuan Rahimah, Klang joined MPR

2007

2007

 

Date

Events
Dec 2007 eMPR web application was developed and deployed
   
Nov 2007 MPR protocol revised
   
Oct 2007 First MPR Investigators' Meeting - 10 centres joined MPR MPR Pilot study (3 months) was initiated.
   
June 2007 New MPR protocol and case report form were developed
   
Mar 2007 Proposal to revise Psoriasis Registry was presented and discussed