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eDermReg (MPR, Skin Biopsy)

eCUSUM

 

Malaysian Psoriasis Registry (MPR)

Psoriasis is a common skin disease characterized by inflamed scaly patches and plaques. It runs a chronic relapsing course with variable degree of severity, and causes significant physical, psychosocial and economic impact on the patient. Being incurable, it may lead to poor patient compliance especially in treatment which will further compromise the overall management of the disease. The Malaysian Psoriasis Registry (MPR) is a skin disease clinical registry. It is a prospective, ongoing systematic collection of data pertaining to patients who have psoriasis. The main reason for setting up a psoriasis registry is to have more accurate data on the various aspects of psoriasis in Malaysia. This would help in assessing the true magnitude of the problem in Malaysia, including the demographic data, types of psoriasis, its severity, aggravating factors, any associated joint and nail involvement and the various types of therapies commonly used. Having a psoriasis registry should also help in research work and more importantly in improving the overall management of the patients.

 

The MPR has the following objectives:

Primary objective:
  To obtain more accurate data on various aspects of psoriasis in Malaysia.
Secondary objectives:
1. To determine the socio-demographic profiles of patients with psoriasis.
2. To determine the disease burden attributed to psoriasis.
3. To provide information for planning of medical services, facilities, manpower and training related to the management of psoriasis.
4. To stimulate and facilitate research on psoriasis and its management.
 

Scope of MPR

The MPR is intended to be a truly national population based disease and treatment registry. Hence it seeks the participation of all providers of dermatological services in both the public and private sectors in Malaysia.

 

The MPR collects

Demographic data
Clinical data including patients' history and clinical examination findings
Quality of life measure i.e. Dermatology Life Quality Index (DLQI)
Modalities of treatment used

 

Outcomes of interest include

Course of the disease
How the disease affects quality of life
Disease improvement with treatment
Association with any other diseases

Inclusion criteria:

1. All patients who are clinically diagnosed to have psoriasis by a registered dermatologist or by a medical practitioner under the supervision of a dermatologist are included.
2. Confirmation of diagnosis by histopathologic examination is optional.

 

Exclusion criteria:

1.  Patients whose diagnosis is in doubt are excluded.