|
National Cardiovascular Disease Database (NCVD) |
|
Name
(Abbreviation) |
National Cardiovascular Disease Database
(NCVD) |
|
Established since:
|
2005 |
|
Contact person: |
Ms. S Gunavathy Selvaraj, NCVD Registry
Manager |
|
Address: |
National Cardiovascular Disease Database,
c/o Clinical Research Centre, Kuala Lumpur Hospital
1st Floor, MMA House,
124, Jalan Pahang
53000 Kuala Lumpur
Malaysia |
|
Phone: |
03-4044 3060 / 03-4044 3070 |
|
Fax: |
03-4044 3080 |
|
Email: |
ncvd@acrm.org.my |
|
URL: |
www.acrm.org.my/ncvd |
|
Registries: |
1. Acute Coronary Syndrome (ACS) registry
2. Percutaneous Coronary Intervention (PCI) registry |
|
Sponsor, Funding
and Governance: |
|
Sponsor: |
Cardiac & Medical Services Ministry of
Health Malaysia, IJN, Cardiac Services of UM, HUKM, Private
cardiac care providers. |
|
Funding: |
The CRC, MOH is the sponsor of the registry
and NHAM as the co-sponsor
The CRC also provides technical support in the form of clinical
epidemiology expertise, and biostatistics and ICT services. |
|
Governance Board: |
A Governance Board was established to
govern the NCVD. The MOH, various professional bodies, and
providers of cardiology related services from all sectors are
represented on this committee to ensure that the NCVD stays
focused on its objectives, and to assure its continuing
relevance and justification. |
|
Objectives: |
The objectives of the NCVD are to:
-
Determine
the number and the time trend of acute coronary syndromes in
Malaysia.
-
Determine
the socio demographic profiles of these patients to better identify
the high risk group in our Malaysian population.
-
Determine
the efficiency of, and adherence to current guidelines of treatment
guidelines.
-
Determine
the number, evaluate and monitor the outcomes of percutaneous
coronary intervention (PCI) based on selected performance
indicators.
-
Determine
the cost to the nation by cardiovascular disease and the
cost-effectiveness of treatment and prevention programs.
-
Stimulate
and facilitate research using this database.
|
|
Scope
and Content: |
The NCVD is intended to be a truly national
population-based disease and treatment registry. It therefore
seeks the participation from all providers of cardiology
services in all sectors (public, NGO and Private) throughout the
country. |
|
Data
collection and transfer: |
Mixed-mode.
The NCVD will collect data using web application to enable
individual SDPs to securely download data they have submitted to
NCVD as well as to download confidential communication where
required.
Data will be collected and entered online at the SDPs level. The
NCVD registry office will track on continuity and quality of
data reported online and prompt SDPs whenever they fall behind
schedule in reporting data. |
|
Record linkage: |
There is a plan to link NCVD’s database to
the Jabatan Pendaftaran Negara’s database to ascertain mortality
outcome.
There is also a plan to link the NCVD to the National Operative
Procedure register and the MOH’s Health Management Information
System (HMIS) to determine morbidity events when these two
databases are properly established. |
|
Reports & Publications: |
The NCVD plans to publish an annual
statistical report. The first ACS report is due in April 2008. |
|
Resources: |
|
|
Registry operations: |
The day-to-day operations of the NCVD will
be undertaken by NCVD staff. |
|
Epidemiology: |
The Clinical Research Centre of the MOH
will provide clinical epidemiology expertise for the registry. |
|
Biostatistics: |
This is outsourced to Biostat Consulting
Sdn Bhd. |
|
ICT support: |
These are outsourced to various IT
companies including NTT (data centre service), MIMOS and KSM
(hardware), Datamed Clinical Computing Sdn Bhd (databases and
applications), SecureTangent (information security), and variety
of specialty software providers (IBM/Ascential, SAS, STATA, WHO/MedDRA,
etc) |
|
Date updated: |
25/01/2008 |
