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The ACRM (Association of
Clinical Registries, Malaysia) was established for the purpose of
facilitating the set up and maintenance of clinical registries and
databases in the country. Registry databases include information
concerning demographics, diagnosis, treatment history and outcomes. A
variety of output can be generated from the information collected.
In Malaysia however, there
have been a lot of debatable issues surrounding clinical databases. The
common problem seems to be in terms of collecting and sharing the data
as well as database maintenance. Most institutions collect data for
their own use. The majority of them have reservations with regards to
data sharing even if it is for a common good. This is due to lack of
clear policies on data sharing. These issues will remain unresolved
unless measures are taken. Thus spelling the need to standardize (in
both content and quality) and share databases.
This association was
established to meet to those needs. It will be used as a platform to set
up and maintain clinical databases for key diseases in Malaysia. It also
aims to be the one stop portal where users can have access; physically
and virtually to majority of clinical databases in Malaysia. |